| Welcome and introductions (Chris Danpure) |
| Governance and terms of reference of OxalEurope |
| European PH registry – |
| Structure, purpose, rules and regulations |
| Sample collection (DNA, liver, urine, storage facilities, ethics …) |
| Studies 1 (PH2, atypical PH, heterozygotes …) |
| Studies 2 (isolated liver TX) (Camille Olivari) |
| 9th International PH Workshop / IPNA New York |
| Presentations from OxalEurope as a group |
| Presentations by individual European PH researchers |
| 10th International PH Workshop – Cologne? (Bernd Hoppe) |
| Relationship between European and North American PH registries (Bernd Hoppe) |
| Sources of funding (OHF, NIH …) |
| Date and place of next meeting |
